We have to fight for our daughter's life!
We have barely welcomed her into this world and we are already looking at every day to come with fear.
After a week of happiness, we received a notification from the hospital - Lila's got SMA1 - Spinal Muscle Atrophy. It's the worst variant of SMA. Shock and fear for our daughter's future were the first reactions. After that we started the fight, we can't give up.
The medication works best if given to babies up to 6 months old. We're racing with time.
Updates are available here: Lila kontra SMA